{"id":1088,"date":"2026-06-13T15:32:04","date_gmt":"2026-06-13T15:32:04","guid":{"rendered":"https:\/\/ultra-rare-sarcoma.de\/?page_id=1088"},"modified":"2026-08-21T22:26:33","modified_gmt":"2026-08-21T22:26:33","slug":"startseite","status":"publish","type":"page","link":"https:\/\/ultra-rare-sarcoma.de\/en\/","title":{"rendered":"Homepage"},"content":{"rendered":"
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Ultra Rare \n
Sarcoma
e.V.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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For people with ultra rare sarcomas. <\/p>

For research.
For hope.
For life.<\/p><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ultra rare sarcomas are among the least researched cancers worldwide. We raise awareness and advocate for more knowledge, better therapies, and real prospects for the future.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Contact point for
Sarcoma patients<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Ultra Rare Sarcoma e. V. is a non-profit patient association based in Munich Germany. We are here for you, as a point of contact for people with sarcomas and their families, regardless of the subtype.<\/p>

We support you with easily understandable information, personal networking, and the connection to suitable contacts. Our special focus is on very rare sarcomas, which affect fewer than one person per million per year. These patients are often overlooked in research, care, and public awareness.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Research<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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We support projects on very rare sarcomas because without research, no new therapies can be developed.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Self-help<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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We connect those affected and their relatives so that no one is left alone with their diagnosis.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Patient involvement<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Affected individuals and their relatives make up at least half of our board.<\/p>

\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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NEWLY DIAGNOSED?<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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You're not alone.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\tA diagnosis of a very rare sarcoma raises many questions, often faster than answers come.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tCOMING SOON <\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Very rare and often overlooked<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Sarcomas account for only about 1% of all cancers. Within these rare tumors, there are over 100 subtypes; many of them affect only a small number of people worldwide.<\/p>

More than half of all sarcoma types are considered very rare: less than 1 case per 1 million people per year. They are poorly researched, often without established therapies, and cause great uncertainty for those affected.<\/p>

Few specialized treatment centers, little reliable information, hardly any clinical studies. Many patients are left alone.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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WHAT DOES THAT ACTUALLY MEAN<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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ultra rare?<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t\tALL CANCER DISEASES WORLDWIDE\n\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\taround 1% of all cancer cases.\n\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tultra rare sarcomas\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t< 1 case per 1 million people\/year\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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News<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\"\"<\/div>\n\t\t<\/a>\n\t\t\t\t
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\n\t\t\t\n\t\t\t\tNew website, new chapter \u2013 almost a year of URS\t\t\t<\/a>\n\t\t<\/h1>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\tJune 17, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t
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Shortly before our first birthday on June 29, 2026,<\/p>\n\t\t<\/div>\n\t\t\n\t\t\n\t\t\tRead more \u00bb\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t<\/div>\n\t\t\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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We promote research, create visibility and connect those affected worldwide.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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We, Ultra Rare Sarcoma e.V, are committed to making a difference.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate now<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Ultra Rare Sarcoma e.V. F\u00fcr Menschen mit sehr seltenen Sarkomen. F\u00fcr Forschung.F\u00fcr Hoffnung.F\u00fcr Leben. Sehr seltene Sarkome sind eine der am wenigsten erforschten Krebsarten weltweit. Wir schaffen Sichtbarkeit und setzen uns f\u00fcr mehr Wissen, bessere Therapien und echte Perspektiven ein. Jetzt spenden Anlaufstelle f\u00fcr Sarkompatient:innen Ultra Rare Sarcoma e. V. ist ein gemeinn\u00fctziger Patientenverein mit […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-1088","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/pages\/1088","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/comments?post=1088"}],"version-history":[{"count":104,"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/pages\/1088\/revisions"}],"predecessor-version":[{"id":2174,"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/pages\/1088\/revisions\/2174"}],"wp:attachment":[{"href":"https:\/\/ultra-rare-sarcoma.de\/en\/wp-json\/wp\/v2\/media?parent=1088"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}