A day for knowledge, exchange and networking, for those affected, relatives and healthcare professionals.
A brief advance notice helps us enormously with planning, thank you!
Anyone who joins spontaneously is still very welcome.
Sarcomas are rare, and those who receive a diagnosis are often faced with more questions than answers. This is precisely what makes direct contact between patients, relatives, and healthcare providers so valuable.
The 1st Munich Sarcoma Patient Day brings everyone together. You'll receive clear, first-hand information from experts at the sarcoma centers at the Klinikum rechts der Isar and the LMU Klinikum, covering diagnostics, surgery, radiation therapy, genetics, clinical trials, and the post-treatment period.
Plenty of time is allotted between the presentations for questions; every question is welcome, even those that might seem insignificant. Parallel sessions in the afternoon will address topics that are often neglected in everyday clinical practice: psycho-oncology, fertility, exercise with cancer, social law, aftercare, and how family members cope with the diagnosis and support each other.
The Ultra Rare Sarcoma e.V. fundraising event
Please register in advance!
To help us plan the day effectively, we kindly ask you to register in advance. Participation is free.
greeting 15 min
Dr. Verena Loidl, Bastian Schwarz · Ultra Rare Sarcoma e. v.
United we stand against sarcomas: Ultra Rare Sarcoma e. V. introduces itself 10 min
Dr. Verena Loidl, Bastian Schwarz · Ultra Rare Sarcoma e. v.
Encouraging stories, statistics survive 45 min
One inspiring patient from each of the partner clinics
Imaging in diagnostics and follow-up care 10 min
Prof. Dr. Klaus Wörtler · TUM University Hospital rechts der Isar
What role does radiation therapy play before or after surgery? 10 min
Prof. Dr. Nina Schmidt-Hegemann · LMU University Hospital
💬 General Q&A session 20 min
Questions about the previous presentations
Lunch break · 45 min
How do genetic analyses help to tailor my therapy to my individual needs? 25 min
Dr. Alisa Lörsch · TUM University Hospital rechts der Isar
What treatment options are available? How does one get into a clinical trial? 10 min
Prof. Dr. Lars Lindner · LMU University Hospital
Surgery in focus: When to operate, with what goal, and what happens afterwards? 10 min
PD Dr. Markus Albersmeier · LMU Clinic
Modern endoprosthetic and biological reconstruction methods for sarcomas 10 min
Prof. Dr. Rüdiger von Eisenhart-Rothe · TUM University Hospital rechts der Isar
💬 General Q&A session 30 min
Questions about the three previous presentations
(No) understanding of social law 30 min
Angelika Amann · CCC Munich
Disability card, sick pay, rehabilitation, and more
Coffee break · 30 min
First round 30 min
Three parallel sessions to choose from
Deciding together: Strengthening the active role of patients!
Serap Tari · LMU University Hospital, PD Dr. med. Ulrich Lenze · TUM University Hospital rechts der Isar, Bettina Rodewald
Anxiety – Ways and helpful strategies for coping – Psycho-oncology
Dr. Friederike Mumm · LMU University Hospital
Sport and cancer
PD Dr. Sabine Kesting · TUM University Hospital rechts der Isar
Break and change · 5 min
Second round 30 min
Two parallel sessions to choose from
Focusing on family members: How I can help and stay strong at the same time
Mareike Schüler-Springorum
Aftercare / Transition
Prof. Dr. Dr. Irene Teichert-von Lüttichau · TUM University Hospital rechts der Isar
Children, teenagers, young adults
Break and change · 5 min
adoption 5 min
End of event
Just get in touch with us!