Shortly before our first birthday on June 29, 2026, the time has come: Ultra Rare Sarcoma e.V. has a new home online. Our website shines with a completely redesigned look that finally makes our identity as a patient organization for rare sarcomas as visible as it deserves.
This was made possible by the agency House of Communication HOC, who have been supporting us as a pro bono partner since September 2025, developed our corporate identity, designed our new flyer, and have now redesigned our website together with us. We are incredibly grateful for this.
The new website is a starting point, not an end point: We will expand it step by step in the coming weeks and months, with more content, more resources and more opportunities for our community.
And right from the start, there are two reasons to mark the dates in your calendar: Registration is now open for the 1st Munich Sarcoma Patient Day at September 18, 2026 as well as for our charity sports event BEWEG WAS! at September 19, 2026 at the Oberschleißheim Olympic regatta course. You can find all the information and registration options directly here on the website.
We look forward to a wonderful summer with you and to everything that is yet to come.
Your Ultra Rare Sarcoma Team
