The German Sarcoma Foundation advocates nationwide for people with sarcomas and GIST, offering information, advice and a strong network to those affected and their families.
The association represents those affected by epithelioid hemangioendothelioma (EHE) and promotes education, networking and research on this very rare disease.
The Sarcoma Patients Advocacy Global Network (SPAGN) is a worldwide alliance of sarcoma patient organizations, which also includes we are a member, which connects affected individuals internationally, represents their interests in research and care, and promotes global exchange on sarcomas.
The patient-founded, non-profit initiative connects affected individuals and research centers and collects structured clinical and molecular data on the extremely rare intimal sarcoma to enable research and future studies.
